Leaky Barbie Butt continued ..

 

You would think that having your arsehole removed would stop anything going in and coming out of it, but oh no I am left with a perineal sinus that is such a massive nuisance. The other thing that is annoying is the fact that because I can function near normally I am put on the back burner by the medical profession.

I don’t mean to moan, ok I do, I understand that many people are very sick and need urgent care, which I was one of them last year, but if an operation leaves someone with a drop in their quality of life then please don’t leave me for 8 months in that condition. I didn’t even know that a sinus could form let alone know that I might be a good candidate for it. ( I had a  rectal stump blowout which caused pelvic sepsis). Could it even cause more serious issues if left? I am left with this constant drip drip which I am sure you can imagine is not much fun. You get very sore and constantly aware of that wetness, not nice when you are trying to get on with life.

My appointment is in two weeks ( fingers crossed that it doesn’t get cancelled again) and I cannot wait. I know something needs doing but I also know that I will again have to wait.

 

Pain in the arse

This post might have slightly too much info for some of you , but I would like to share this for those of you who may have similar, or may be having this surgery in the future. Ok so nine months after my original total proctectomy, and two months on from perineal proctectomy, I am still leaking infection from my back passage. How, you might ask, if your rectum and anus were removed and sewn shut?, the answer is a small dot of a hole.

It was great for a few weeks, even though I was still a bit sore, I wasn’t leaking. Then all of a sudden it started. It isn’t just a small bit either, its a constant dribble or drip.

Now, to set things in order. I had the rectal stump blow out nine days after surgery, which gave me pelvic sepsis. I had to have a rectal drain into my pelvic cavity, and it never really stopped from then. I had intravenous antibiotics quite a few times whilst I was in, and came home 10 weeks later still with the catheter in situ. Eventually, my surgeon removed it and said that the infection would continue to drain through my stump , and I had to wear padding. It was expected to slow down or stop but the proctectomy would make things ok. I thought, at least it isnt giving me a temperature anymore.

Well it hasn’t really cured it at all. It started to leak from a very small hole in the stitched wound, and the wound healed but still left the small hole. I went to my GP who put me on antibiotics yet again, and took a swab. I had a call a few days later to say that the type of infection that was there,needed a different antibiotic so as soon as I had finished the first one, I was to start the second one. It did actually stop for a few days and I thought that was that. But alas, no such luck. It started again with a vengeance and is really uncomfortable, as you can feel it wet and sore. I again went to my GP but because the hole is so small, I can’t have it packed .

The hospital had already changed my post surgery appointment twice , so now it was way off in April. So now I had the task of trying to get in earlier. Eventually the colorectal receptionist got me squeezed it at the end of February. I still have a month to go and even then, don’t know what will happen. I have no idea how serious it is to leave it either.

I know that the NHS is so busy, and do not blame them for this, its just a real pest after all these months of problems and surgeries, it feels like there is no light at the end of the tunnel. Will let you know the outcome , except to say that when I googled it ( I know, bad move) that it is quite rare with the blowout and sepsis that one person had to have a flap of skin of his thigh placed over the wound. Sounds lovely.

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