SUPPORT NETWORKS

There are many ways to get information or meet others with stomas.

If you are a twitter user or Facebook user, you can search for many stoma forums or sites.

Here are a few that can help, that also have their own websites, twitter pages and Facebook.

 

 

CROHNS & COLITIS UK IS A MUST FOR ANYONE WITH THESE DISEASES. IT HAS A WEALTH OF INFORMATION ON THE WEBSITE, AND IF YOU JOIN YOU CAN GET A “CAN’T WAIT CARD”, AND ABILITY TO PURCHASE A RADAR KEY FOR THE USE OF DISABLED TOILETS. 

click here

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PURPLE WINGS IS A FANTASTIC CHARITY TO HELP PEOPLE WHO HAVE ILEOSTOMIES OR COLOSTOMIES BECAUSE OF INFLAMMATORY BOWEL DISEASE. YOU CAN ALSO HAVE ACCESS TO A STOMA NURSE FOR ADVISE. THEY DO LOTS OF FUNDRAISNG AND THE GOOD THING WITH PURPLE WINGS IS THAT YOU CAN APPLY FOR GRANTS.

click here

 

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COLOSTOMY ASSOCIATION HAS LOTS OF INFORMATION FOR THOSE WITH COLOSTOMIES, THEY HAVE AN ONLINE MAGAZINE CALLED TIDINGS, AND STOMA SUPPORT GROUPS INFORMATION. 

click here

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STOMAWISE ALSO HAS A COMPREHENSIVE WEBSITE WITH INFORMATION FOR OSTOMATES, AND ALSO HAS AN ONLINE SHOP. IT HAS A SECTION FOR HEALTHCARE PROFESSIONALS TO REGISTER TO. 

click here

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THE ILEOSTOMY & INTERNAL POUCH SUPPORT GROUP IS NATIONWIDE WITH REGIONAL GROUPS WHO MEET UP REGULARLY. THE WEBSITE ALSO HAS A FANTASTIC FORUM THAT YOU CAN JOIN AND GET LOTS OF TIPS AND ANSWERS. 

click here

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STOMAATJE WAS ORIGINALLY A DUTCH WEBSITE FOR PEOPLE WITH STOMAS, IT HAS SINCE BEEN TRANSLATED INTO ENGLISH FOR US TO BENEFIT FROM. APART FROM LOTS OF INFORMATION, THEY HAVE A “BELLY WALL” FOR YOU TO POST A PIC OF YOUR SIDEKICK (STOMA) 

click here

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GET YOUR BELLY OUT IS A GLOBAL CAMPAIGN TO RAISE AWARENESS FOR IBD. YOU CAN DONATE ON THEIR WEBPAGE AND THEY ALSO HAVE REGULAR FUNDRAISING EVENTS INCLUDING A BALL.

 click here

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LIVING WITH A STOMA IS A VERY COMPREHENSIVE GUIDE TO ALL THINGS STOMA. TONS OF ALL SORTS OF INFORMATION INCLUDING UK AND WORLDWIDE SUPPLIER LISTS, HELP FOR CHILDREN, AND PRODUCTS THAT ARE AVAILABLE.

click here

 

 

 

A BIGGER LIFE IS A FAIRLY NEW SITE FROM THE EAKIN COMPANY. IT IS VERY COMPREHENSIVE WITH MANY PAGES OF HELP. THEY HAVE ARTICLES BY CLINICAL ADVISERS AND STOMA NURSES, A FORUM AND LOTS MORE.

click here

 

Ostomy and jpouch moms is a worldwide awareness group on facebook, They have a community page for you to follow and ask questions with other like minded people. Please take a look.

 

click here

OSTOMY AND JPOUCH MOMS