There are many ways to get information or meet others with stomas.
If you are a twitter user or Facebook user, you can search for many stoma forums or sites.
Here are a few that can help, that also have their own websites, twitter pages and Facebook.
CROHNS & COLITIS UK IS A MUST FOR ANYONE WITH THESE DISEASES. IT HAS A WEALTH OF INFORMATION ON THE WEBSITE, AND IF YOU JOIN YOU CAN GET A “CAN’T WAIT CARD”, AND ABILITY TO PURCHASE A RADAR KEY FOR THE USE OF DISABLED TOILETS.
COLOSTOMY ASSOCIATION HAS LOTS OF INFORMATION FOR THOSE WITH COLOSTOMIES, THEY HAVE AN ONLINE MAGAZINE CALLED TIDINGS, AND STOMA SUPPORT GROUPS INFORMATION.
STOMAWISE ALSO HAS A COMPREHENSIVE WEBSITE WITH INFORMATION FOR OSTOMATES, AND ALSO HAS AN ONLINE SHOP. IT HAS A SECTION FOR HEALTHCARE PROFESSIONALS TO REGISTER TO.
THE ILEOSTOMY & INTERNAL POUCH SUPPORT GROUP IS NATIONWIDE WITH REGIONAL GROUPS WHO MEET UP REGULARLY. THE WEBSITE ALSO HAS A FANTASTIC FORUM THAT YOU CAN JOIN AND GET LOTS OF TIPS AND ANSWERS.
STOMAATJE WAS ORIGINALLY A DUTCH WEBSITE FOR PEOPLE WITH STOMAS, IT HAS SINCE BEEN TRANSLATED INTO ENGLISH FOR US TO BENEFIT FROM. APART FROM LOTS OF INFORMATION, THEY HAVE A “BELLY WALL” FOR YOU TO POST A PIC OF YOUR SIDEKICK (STOMA)
GET YOUR BELLY OUT IS A GLOBAL CAMPAIGN TO RAISE AWARENESS FOR IBD. YOU CAN DONATE ON THEIR WEBPAGE AND THEY ALSO HAVE REGULAR FUNDRAISING EVENTS INCLUDING A BALL.
LIVING WITH A STOMA IS A VERY COMPREHENSIVE GUIDE TO ALL THINGS STOMA. TONS OF ALL SORTS OF INFORMATION INCLUDING UK AND WORLDWIDE SUPPLIER LISTS, HELP FOR CHILDREN, AND PRODUCTS THAT ARE AVAILABLE.
A BIGGER LIFE IS A FAIRLY NEW SITE FROM THE EAKIN COMPANY. IT IS VERY COMPREHENSIVE WITH MANY PAGES OF HELP. THEY HAVE ARTICLES BY CLINICAL ADVISERS AND STOMA NURSES, A FORUM AND LOTS MORE.
Ostomy and jpouch moms is a worldwide awareness group on facebook, They have a community page for you to follow and ask questions with other like minded people. Please take a look.
OSTOMY AND JPOUCH MOMS
